Rob Stein

Like millions of other Americans, Victoria Gray has been sheltering at home with her children as the U.S. struggles through a deadly pandemic, and as protests over police violence have erupted across the country.

But Gray is not like any other American. She's the first person with a genetic disorder to get treated in the United States with the revolutionary gene-editing technique called CRISPR.

All laboratories will now be required to include detailed demographic data when they report the results of coronavirus tests to the federal government, including the age, sex, race and ethnicity of the person tested, the Trump administration announced Thursday.

The new requirement, which will go into effect Aug. 1, is designed to help provide long-sought, crucial information needed to monitor and fight the pandemic nationally.

The head of the federal Centers for Disease Control and Prevention said Friday that a new analysis shows the agency's delayed rollout of coronavirus testing did not hinder the nation's response to the pandemic.

The coronavirus didn't start spreading in the U.S. until late January or early February, the CDC analysis found, and it circulated at low levels for quite some time.

As a result, the availability of earlier widespread testing for the virus would not have been able to spot it, according to CDC Director Robert Redfield.

Salvador Perez got really sick in April. He's 53 and spent weeks isolated in his room in his family's Chicago apartment, suffering through burning fevers, shivering chills, intense chest pain and other symptoms of COVID-19.

"This has been one of the worst experiences of his life," says Perez's daughter, Sheila, who translated from Spanish to English for an interview with NPR. "He didn't think he was going to make it."

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